From A Mothers Perspective – Part 2 Featuring Kai Owens’ Mom, Kim

Part 2 in a special series with www.victoriaclaire-beyondvision.com
Written by: Kim Owens, mom of Kai Owens.

Letting Go

Overnight our bright, happy, outgoing 9-year-old-son, Kai, became anxious and afraid. He refused to sleep in the dark and he clung nervously to my side. His personality changed drastically and we were terrified. Over the next year, we visited many specialists but received no clarity.

Then one day I noticed that his handwriting started in the middle of the page and trailed off the right side.  I asked why he wasn’t using the left side of the paper and watched as he held the paper up to eye-level, and moved it from side to side, inspecting it closely.  Kai’s last eye exam had been 4 months prior, but I became certain that something was wrong with his vision.  The eye doctor agreed to take another look and that’s when he noticed that Kai’s retinas looked funny. Continue reading “From A Mothers Perspective – Part 2 Featuring Kai Owens’ Mom, Kim”

From A Mothers Perspective – Part 1 Featuring Victoria Claire’s Mom, Sandra Tinsley

Part 1 in a special series with www.victoriaclaire-beyondvision.com
Written by: Sandra Tinsley, mother of Victoria Claire

My daughter was diagnosed with Retinitis Pigmentosa when she was 19 years old and just beginning her adult life at university.  How dreadful that must have been for her.

I felt absolutely devastated for her and myself.  Having been such a good baby, totally happy, always laughing, nothing ever bothered her, she would tackle anything.

I cried, questioned myself asking was it something that I had done during my pregnancy, had I worked too hard?  We had moved house 2 week before she was born, she was also born with the cord around her neck.  You always think the worst trying to find answers. Continue reading “From A Mothers Perspective – Part 1 Featuring Victoria Claire’s Mom, Sandra Tinsley”

When Drivers & Mobility Canes Intersect

Guest post by Kai Owens for Navigating Blindness

Hi, I’m Kai Owens. I am a 16-year-old athlete, drummer, and mainstream high school student. I’m also legally blind from Retinitis Pigmentosa. I’ve done a lot of Orientation & Mobility training locally, and I’ve also traveled extensively in the US and Vancouver, BC. I use my mobility cane at all times and I’ve recently been approved for a guide dog. I’d like to share a few of my observations about when drivers and mobility canes intersect.

At some point, most sighted people have been driving and seen a blind person and panicked.  Some of the encounters are full of mistakes that really do not make any sense. I’m going to walk you through a few common mistakes drivers make in hopes of raising awareness. Continue reading “When Drivers & Mobility Canes Intersect”

KnowledgeABLE Featuring Victoria Claire: Seeing Through My Creativity

Hi there Navigating Blindness followers, this is Victoria Claire from www.victoriaclaire-beyondvision.com  and I’m excited to share how creativity has helped me cope, grow and find joy with vision loss.

“Disability is not an impairment to creativity.”  This is one of my statements when engaging with the public while speaking as a sight loss awareness advocate.

As a professional artist in contemporary sculpture, with a career spanning 25 years, I would like to share with you the importance of my creativity whilst traveling along my pathway of sight loss. Creativity became my first port of call when I was at my lowest point after being diagnosed with RP at the age of 19 in 1994.  I was a young art student studying graphic design at art college when I found out I was going to go blind.  Initially, I didn’t know how to take in what I had been told.  For a while, I tried to ignore it and carry on with my life as an art student. Continue reading “KnowledgeABLE Featuring Victoria Claire: Seeing Through My Creativity”

Hindsight 20/20 Featuring Jill Richmond

Hi everyone! I’m super excited to share a new segment on Navigating Blindness called Hindsight 20/20 which will feature parents of blind and visually impaired (B/VI) individuals who have agreed to answer 20 questions with hindsight. My hope is that their stories will encourage us parents who are still heads-down in the day-to-day thick of raising our children and advocating for their educational needs.

These interviews will each be very unique because blindness is a spectrum and each child, parent, and family has different situations, goals, and expectations.  As parents, we need to educate ourselves and consider the foundations’ advice, the doctors’ advice, the teachers’ advice and so on (the list of people weighing in on our children’s lives seems endless) but, ultimately, we are our children’s strongest advocates. We are responsible for providing the tools and guidance necessary for them to grow into adults who advocate for themselves in this big diverse world.

Join me in welcoming Jill Richmond as she shares her journey with her oldest son Aaron. Let’s navigate blindness, together.

Continue reading “Hindsight 20/20 Featuring Jill Richmond”

Breathe, Mama Bear, Breathe

Last week was the first week my legally blind son was back in school since the holidays. It was also the week that the action items in our formal mediation agreement were to be implemented by his high school.

The amount of internal stress I felt about his return to school took me by surprise. My fight-or-flight instinct kicked-in keeping my muscles tense, my breathing shallow, my mind jumpy and making sleep elusive. Continue reading “Breathe, Mama Bear, Breathe”