About

Welcome to Navigating Blindness.  My name is Kim, and my 19-year-old son, Kai, began unexpectedly losing his vision 9 years ago to an aggressive form of Retinitis Pigmentosa (RP). He has the first known case of RP in our family. When we first heard the words “Retinitis Pigmentosa, no known treatment, no known cure” we thought our lives were shattered.

Fast forward 9 years and Kai has learned to read braille, use a mobility cane, and advocate for himself. He graduated as valedictorian and has moved away to a large university. He’s become the world’s only legally blind sponsored skimboarder, and he’s a drummer, skater and surfer. He’s determined to embrace vision loss and live his life to the fullest.

Vision loss has deeply impacted our family and has enriched our lives in ways we never could have imagined. It’s not been easy, but our lives are filled with opportunities for growth as we learn to accept and navigate blindness, together.

**It has recently been discovered that he had been misdiagnosed and in fact has a rare genetic condition called ABCA4-linked Retinopathy plus Autoimmune Retinopathy.**

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