Welcome to Navigating Blindness.  My name is Kim, and my 16-year-old son, Kai, began losing his vision 6 years ago due to an aggressive form of Retinitis Pigmentosa (RP). He has the first known case of RP in our family.

When my son first started to lose his vision, I felt lost. Living in a small town makes it challenging to connect with other parents answering the question:  “My child is going blind, now what?”

If you are interested in connecting, please subscribe, introduce yourself, or leave a comment and let’s move forward together.

Image description: Our family of four (dad, 2 sons & mom) standing in a large open field with evergreen trees in the distance.