Part 1 in a special series with www.victoriaclaire-beyondvision.com
Written by: Sandra Tinsley, mother of Victoria Claire
My daughter was diagnosed with Retinitis Pigmentosa when she was 19 years old and just beginning her adult life at university. How dreadful that must have been for her.
I felt absolutely devastated for her and myself. Having been such a good baby, totally happy, always laughing, nothing ever bothered her, she would tackle anything.
I cried, questioned myself asking was it something that I had done during my pregnancy, had I worked too hard? We had moved house 2 week before she was born, she was also born with the cord around her neck. You always think the worst trying to find answers. Continue reading “From A Mothers Perspective – Part 1 Featuring Victoria Claire’s Mom, Sandra Tinsley”
I’m happy to share this incredibly educational video by YouTuber “Cayla with a C” that I think parents of children who are blind and visually impaired will appreciate. Her topics of acceptance, understanding, compassion, independence, and community are spot on. Continue reading “Video Spotlight: YouTuber “Cayla with a C””
I’m excited (and a bit nervous) to share a very vulnerable piece of our family’s journey which was published in the June 2019 edition of Captivating! Magazine. The article is titled “The Value of a Disabled Woman.” Continue reading “The Value of a Disabled Woman”
Guest post by Kai Owens for Navigating Blindness
Hi, I’m Kai Owens. I am a 16-year-old athlete, drummer, and mainstream high school student. I’m also legally blind from Retinitis Pigmentosa. I’ve done a lot of Orientation & Mobility training locally, and I’ve also traveled extensively in the US and Vancouver, BC. I use my mobility cane at all times and I’ve recently been approved for a guide dog. I’d like to share a few of my observations about when drivers and mobility canes intersect.
At some point, most sighted people have been driving and seen a blind person and panicked. Some of the encounters are full of mistakes that really do not make any sense. I’m going to walk you through a few common mistakes drivers make in hopes of raising awareness. Continue reading “When Drivers & Mobility Canes Intersect”
I am deeply tired. We have been having a rough time lately. My autoimmune disease has been flared up causing pain, fatigue and general malaise. Kai just underwent his bi-annual appointment at the eye clinic 4 hours from home. It’s hard to endure those long drives, long waits and painful tests when the outcome is only for school documentation — no treatment. Top that off with my oldest son having to learn some hard self-care lessons while away at college and sprinkle it with my dad’s inability to admit to a severe drug and alcohol addiction and I find myself wondering: Am I willing? Continue reading “Willingness is the Key”
Hi everyone, I’m excited to introduce you to my Instagram friend Jen from Fit Chick With The Stick. Jen caught my attention instantly because, like my son Kai, fitness has become her “fix.” Please join me in learning how fitness has impacted her sight loss journey.
My Own Independence Day by Jen Dutrow
The day is warm, the temperature is perfect, a light breeze blows through the open car windows. The sky is cloudless and a beautiful periwinkle blue. You’re driving along the coastline with your favorite music blaring.
Now, imagine never doing that again by yourself. That’s what happened to me after my eye doctor told me I’d have to hand over my license. I had driven to work that day not knowing that was the last day I’d ever drive. Continue reading “KnowledgeABLE Featuring Jen from Fit Chick With The Stick: My Own Independence Day”
Hi there Navigating Blindness followers, this is Victoria Claire from www.victoriaclaire-beyondvision.com and I’m excited to share how creativity has helped me cope, grow and find joy with vision loss.
“Disability is not an impairment to creativity.” This is one of my statements when engaging with the public while speaking as a sight loss awareness advocate.
As a professional artist in contemporary sculpture, with a career spanning 25 years, I would like to share with you the importance of my creativity whilst traveling along my pathway of sight loss. Creativity became my first port of call when I was at my lowest point after being diagnosed with RP at the age of 19 in 1994. I was a young art student studying graphic design at art college when I found out I was going to go blind. Initially, I didn’t know how to take in what I had been told. For a while, I tried to ignore it and carry on with my life as an art student. Continue reading “KnowledgeABLE Featuring Victoria Claire: Seeing Through My Creativity”