Hi, I'm Kim Owens and my 18-year-old son is going blind from a genetic retinal disease ABCA4 Retinopathy plus Autoimmune Retinopathy. I'm hoping to connect with other parents of blind and visually impaired children to share experiences about navigating blindness.
Hi everyone! It has been a while since we posted an update. This is Kim/mom and I hope you are well. Kai graduated high school back in May and moved to a huge college campus in August – 4 hours away with 40k students! He’s 6 weeks into his new college career and is thriving. He rates his college experience as a 9 or 10 out of 10. We are so thrilled for him!
He graduated his mainstream high school as Valedictorian. You can watch his valedictory speech by clicking here. The support we received along the journey was simply amazing. We have met the most incredible people in the blind/low vision community. We have worked with amazing mentors and educators and we have grown so much. Most importantly, Kai has developed the confidence and skills to advocate for himself in a university setting. He’s working closely with his vocational rehabilitation counselor, his professors and the University’s Disability Resources Center to get access to the education he desires. He’s traveling all over the campus and town independently with his excellent orientation and mobility skills.
And, don’t forget about our t-shirt shop: www.EyeSwearApparel.com Blindness Advocacy with a twist. Great gift ideas for you and your blind/vi friends and all proceeds go toward Kai’s educational expenses.
We look forward to getting to know you and continuing to navigate blindness together. — The Owens Family
Today I mailed off my final project in hopes of earning my national braille transcriber certification from the Library of Congress! It’s a 35 page manuscript and I must pass with an 80+.
In November 2018 we went through a formal complaint and mediation process with our school district because Kai was not receiving timely, accurate braille materials for his math and science classes. We “won” at mediation and things got much better, but while fighting for braille I felt so helpless. My son was completely at their mercy. It was then, that I decided I wanted to learn to create braille materials, and I set the goal to get certified by the time he graduates high school.
Y’all, when I registered for training to become a braille transcriber in Feb 2019, I didn’t even know the braille alphabet! I honestly cannot believe I’ve made it to this point.
Parents of kids who are blind or low vision often ask if they “should” learn Braille. Here are my thoughts on that, and my answer may surprise you!
Hi everyone, I’m excited to introduce you to a new project by author Jon Marin. His new book, “See Us” is being released soon and it addresses a crucial factor in the lives of young people who are blind and visually impaired – finding meaningful work. Currently, in the US, 70% of blind and visually impaired people do not work. This is due to a variety of factors including prejudice, ableism, education, training and more, and Jon addresses several huge obstacles in his work as the Program Director of The Career Discovery Project. We can learn a lot from him and his clients in his new book “See Us.”
We’d like to thank the fabulous team over at Bold Blind Beauty for choosing Kai to be featured in Beyond Sight Magazine’s Men In Motion. Below is a bit about their online magazine and a link to Kai’s feature article and video.
From Beyond Sight: In 2021 we will be introducing you to incredible young people like Kai Owens who are doing extraordinary things. These young people are extraordinary because in spite of the barriers they encounter daily they persist. Many have learned from an early age to self-advocate and the strength, resilience, and tenacity they possess will change perceptions.
Hi everyone, we hope you are well. We’ve been a little quiet over here, dealing with Kai’s new diagnosis, treatment, college applications, music auditions and a family death. (We’re always keepin’ it real over here!) So, you probably wont hear much from us over the holidays as we attempt to regroup and recharge. However, we wanted to take a moment to wish you a healthy, peaceful holiday season and tell you about something that is making us smile right now. Y’all need to check out the Touch Pad Pro! It’s everything we’ve all dreamed of and more! Below are a few highlights and for more information you can visit the website or listen to an audio interview with founder Daniel Lubiner and Bold Blind Beauty.
I am speaking at a new event that is attracting hundreds of family, friends, and educators of the blind and visually impaired community, and shining an exciting light on those that are thriving with blindness. I am one of over 20 speakers (from 6 different countries) for The Succeed Without Sight Summit! Below is a link to get your FREE tickets! I hope you can join us on 11/12-14! – Kim
“Are you a visually impaired person who just does not feel that there are any opportunities open to you? Are you a parent of a visually impaired young person, and at a loss for how to encourage your child to believe in themselves? Are you a charity that works with visually impaired young people and believes that hearing experiences of others will help inspire your youth group, or individuals and families you work with? …”
Here is the link to the book “Emerging Proud Through Eye Sight Loss” that launched on World Sight Day! Kai is one of the story contributors.
About the launch video: Reposted from EyeInspire2020
Join us to celebrate the Eye Inspire book release on WORLD SIGHT DAY 2020 at 1pm ET (6pm BT). Featuring some of the amazing visually impaired story contributors, talking about their experiences with sight loss and amazing achievements, plus their involvement in the Eye Inspire project as a whole. Also news on how the book will benefit young people with sight loss and how the project will develop further. Expect oodles of inspiration and VIPs!
Kai speaks at 22:30 but the event is filled with awesome guests!
Our special guests span the globe, from USA to Australia! Spread the word and join us for a super inspiring live stream event full of great interviews with amazing VIPs. Featuring Kai Owens, Jonathan Goerlach, Nicole Kada, James Laird, Nigel Limb, Alice Cadman, Bari Azman and Daniel Williams, plus hosted by our founder DJ MissChivers. Nothing is impossible.