The Courage to Share: 11 Blogs About Living with Sight Loss

Kai & I are very excited to share these eleven blogs that are written by individuals who are living with sight loss.

The bloggers have different diagnoses, and their philosophies, cultures, and religious backgrounds vary, but what they all have in common is the courage to share. They are organized by year of diagnosis.

Lucy Swan: Retinitis Pigmentosa, 1999

I write about living with sight loss, as I live my life and follow my journey. I write to show that sight loss does not define me, it’s just part of who I am.


More info:  Instagram


Joe Rinaldi: Bests Disease, 2005

My blog is about lifting people up by helping them find strength in their struggle.


More Info: Instagram  Facebook


Alexa Huth:  Bilateral Lattice Degeneration, 2009

After my diagnosis, I didn’t know how to process my new reality, and I felt incredibly alone. Blogging about my experiences helps me to explain how I interact with the world and connect with others in similar situations. I write my honest thoughts (often with an attempt at humor thrown in) to show what it’s really like never to know what your eyes are doing each day.


More info: Instagram


Sara Claudia: Complete sight loss & partial hearing loss from complications following a surgery in 2015.

Since losing my sight in 2015, 2 Corinthians 5:7 has become my motto. It says, “For we walk by faith, not by sight.” So, what does it mean to navigate the world solely on your trust in God and on your belief in the unseen? What does it mean to walk by faith and not by sight? Check out my blog to find out!


More info:   Instagram   Facebook    Podcast

One Vision Blog: Macular Dystrophy & Stargardts, 2015

My Blog is an optimistic, honest view of living with macular dystrophy. The highs and lows, and any new difficulties that I face.


More Info:  Instagram     Facebook


Katie’s Vision: Stargardts, 2017

When I was diagnosed I started my blog to help me cope. I found it helped a lot of other people going through the same thing too, so continued writing my journey. It has been great for me to be in contact with others living with Stargardts and my blog has helped me to create a support network for myself and others with vision loss.


More Info:  Instagram   Facebook 


Hey Lou Writes: Retinitis Pigmentosa, 2019

Hey Lou Writes is an ever-evolving blog where I explore laughter and faith, and sometimes the lack of both, in the midst of life-altering changes. Everything from infertility, stepmotherhood, divorce and remarriage, retinitis pigmentosa, and the list goes on… I am an open book. I am a kombucha loving, enneagram 7, organic farmer turned teacher who has found that sharing my story makes it a whole lot easier to live within the pages.


More info:  Instagram


Here are a few other favorites that you should check out too:

Bold Blind Beauty

The Blind Thistle

Victoria Claire Beyond Vision

Blind Mom in the Burbs


Collage of the eleven bloggers featured in this post.  Please check out their blogs and show them some love on social media too. We are stronger when navigating blindness together.

2 thoughts on “The Courage to Share: 11 Blogs About Living with Sight Loss

Leave a Reply

Fill in your details below or click an icon to log in: Logo

You are commenting using your account. Log Out /  Change )

Twitter picture

You are commenting using your Twitter account. Log Out /  Change )

Facebook photo

You are commenting using your Facebook account. Log Out /  Change )

Connecting to %s