Did you miss the Eye Health and Vision Resources for Parents and Caregivers Webinar?
Guess what? You can watch my presentation by clicking here.
ID: 2 adults with 2 young children on their backs.
Hi, It’s Kim and I’m thrilled to announce that I’ll be presenting at the upcoming Use Your Voice: Advocacy Strategies for Children’s Vision FREE webinar!
Join Prevent Blindness and the National Center for Children’s Vision and Eye Health on Wednesday, June 4, 2025, from 2:00 p.m. until 3:15 p.m. ET for a 75-minute webinar Use Your Voice: Advocacy Strategies for Children’s Vision. In this webinar, participants will gain a deeper understanding of the advocacy process; the value and impact that individual and community voices have on the advocacy process; and how to effectively advocate for public policies that govern health care, eye care, and school systems to ensure responsiveness to children’s vision health needs.
Register HERE
This webinar will explore the following topics:
- What is advocacy, and why is advocacy for programs, services, and public policy regarding children’s vision issues important?
- How to advocate for programs and services for children with vision impairment, rare diseases, or other disabilities.
- How parents of children with vision impairment can use their children’s experiences in their advocacy journeys.
- The Early Detection of Vision Impairments for Children Act (EDVI) of 2025 (HR 2527): How to advocate for passage of the first legislation to create a federal level program to support children’s vision health through grants to states and communities for systems improvement.
- Example of advocacy in the rare disease community with respect to the ORPHAN Cures Act.
The webinar will be moderated by Prevent Blindness staff Donna Fishman, Director, National Center for Children’s Vision and Eye Health and Sara Brown, Senior Director, Government Affairs.
Presenters:
- Bridget Benard and Kim Owens- Graduates of the ASPECT program and parents of children with visual impairments
- Susan Hepworth- Executive Director, National Coalition for Infant Health
- Nicole Pratt- PTI Co-Director, Training Program Director, Leaders Empowered as Advocates with Dignity (LEAD) Project Director, SPAN Parent Advocacy Network
- Shannon Rohn Deere- Director, Leavitt Partners
Certificates of Attendance will be available upon request.
Below you’ll find links to some related information including an essay I wrote about the Early Detection of Vision Impairments Act, a podcast episode where I shared a bit more of our family’s journey, and information about joining the ASPECT Patient Engagement Program. Please check out these resources and I look forward to seeing you on June 4th!
Essay: My 10-Year-Old Son Was Blind and No One Knew
Navigating Blindness 