Part 1 in a special series with www.victoriaclaire-beyondvision.com
Written by: Sandra Tinsley, mother of Victoria Claire
My daughter was diagnosed with Retinitis Pigmentosa when she was 19 years old and just beginning her adult life at university. How dreadful that must have been for her.
I felt absolutely devastated for her and myself. Having been such a good baby, totally happy, always laughing, nothing ever bothered her, she would tackle anything.
I cried, questioned myself asking was it something that I had done during my pregnancy, had I worked too hard? We had moved house 2 week before she was born, she was also born with the cord around her neck. You always think the worst trying to find answers. Continue reading “From A Mothers Perspective – Part 1 Featuring Victoria Claire’s Mom, Sandra Tinsley”
I’m happy to share this incredibly educational video by YouTuber “Cayla with a C” that I think parents of children who are blind and visually impaired will appreciate. Her topics of acceptance, understanding, compassion, independence, and community are spot on. Continue reading “Video Spotlight: YouTuber “Cayla with a C””
I’m excited (and a bit nervous) to share a very vulnerable piece of our family’s journey which was published in the June 2019 edition of Captivating! Magazine. The article is titled “The Value of a Disabled Woman.” Continue reading “The Value of a Disabled Woman”
Hi everyone! I’m super excited to share a new segment on Navigating Blindness called Hindsight 20/20 which will feature parents of blind and visually impaired (B/VI) individuals who have agreed to answer 20 questions with hindsight. My hope is that their stories will encourage us parents who are still heads-down in the day-to-day thick of raising our children and advocating for their educational needs.
These interviews will each be very unique because blindness is a spectrum and each child, parent, and family has different situations, goals, and expectations. As parents, we need to educate ourselves and consider the foundations’ advice, the doctors’ advice, the teachers’ advice and so on (the list of people weighing in on our children’s lives seems endless) but, ultimately, we are our children’s strongest advocates. We are responsible for providing the tools and guidance necessary for them to grow into adults who advocate for themselves in this big diverse world.
Join me in welcoming Jill Richmond as she shares her journey with her oldest son Aaron. Let’s navigate blindness, together.
Continue reading “Hindsight 20/20 Featuring Jill Richmond”
Hello there – It’s Pamela dropping in from The Blind Thistle! I’ve been invited as a guest blogger here on Navigating Blindness. I will be sharing my tips and suggestions on how to make the home a better space to navigate for the Visually-Impaired (VI).
I ‘met’ Kim (the lovely woman behind the Navigating Blindness blog) through Instagram and we hit it off from the start. Her son and I share the same eye disease, Retinitis pigmentosa (RP). While her son’s diagnosis was made a few years back, I have been dealing with my RP for well into 40 years now. Continue reading “KnowledgeABLE featuring Pamela from The Blind Thistle: Finding Your Way in the Chaos”