Hi there Navigating Blindness followers, this is Victoria Claire from www.victoriaclaire-beyondvision.com and I’m excited to share how creativity has helped me cope, grow and find joy with vision loss.
“Disability is not an impairment to creativity.” This is one of my statements when engaging with the public while speaking as a sight loss awareness advocate.
As a professional artist in contemporary sculpture, with a career spanning 25 years, I would like to share with you the importance of my creativity whilst traveling along my pathway of sight loss. Creativity became my first port of call when I was at my lowest point after being diagnosed with RP at the age of 19 in 1994. I was a young art student studying graphic design at art college when I found out I was going to go blind. Initially, I didn’t know how to take in what I had been told. For a while, I tried to ignore it and carry on with my life as an art student. Continue reading “KnowledgeABLE Featuring Victoria Claire: Seeing Through My Creativity”
Hi everyone! I’m super excited to share a new segment on Navigating Blindness called Hindsight 20/20 which will feature parents of blind and visually impaired (B/VI) individuals who have agreed to answer 20 questions with hindsight. My hope is that their stories will encourage us parents who are still heads-down in the day-to-day thick of raising our children and advocating for their educational needs.
These interviews will each be very unique because blindness is a spectrum and each child, parent, and family has different situations, goals, and expectations. As parents, we need to educate ourselves and consider the foundations’ advice, the doctors’ advice, the teachers’ advice and so on (the list of people weighing in on our children’s lives seems endless) but, ultimately, we are our children’s strongest advocates. We are responsible for providing the tools and guidance necessary for them to grow into adults who advocate for themselves in this big diverse world.
Join me in welcoming Jill Richmond as she shares her journey with her oldest son Aaron. Let’s navigate blindness, together.
Continue reading “Hindsight 20/20 Featuring Jill Richmond”
Signs. They are everywhere. Sometimes they alert us to danger, sometimes they send us on a detour. Our sign was created specifically to create a safe space for our blind son to traverse his high school parking lot filled with student drivers.
A couple of weeks ago in a Facebook forum for parents of blind kids, a parent asked how other people handle school drop off/pick up. I read several responses and decided to post a picture of our solution: a sign. Continue reading “Be Aware: Signs Ahead.”
Hi friends, This is my final post in a 3-part series about my family’s Special Education Formal Complaint and Mediation proceeding. If you are a new visitor to this blog, I’d recommend starting with the previous posts: Special Education Mediation Experience and Formal Complaint & Mediation Processes Explained. Continue reading “Preparing for Battle: Support & Organization”
As discussed in my previous post we filed a Formal Complaint against our school system. This post will give an overview of what I learned about the complaint and mediation processes.
In early September, I downloaded the “formal complaint form” from our state’s education website. The document was four pages and asked a series of questions about the issues, and how we believed they could be resolved. The Formal Complaint only covered issues that occurred within a 1-year time period. Near the bottom of the form, there was a question asking if we would be willing to mediate? I selected “yes” thinking that I wanted to do everything possible to come to a resolution for my son. I submitted the complaint along with 20 pages of detailed records outlining the issues along with two recommendations for resolution. Then I waited. Continue reading “Formal Complaint & Mediation Processes Explained”
It’s been 5 days since our 8-hour mediation proceeding with the school district. (Yes, 8 long, emotionally draining hours.) The mediation was in response to a formal complaint we filed in September. Our allegations were that the school was not providing a Free Appropriate Public Education and was not upholding the Individuals with Disabilities Education Act in the areas of Accessibility and IEP Implementation.
I’m writing this article to assist other parents of blind children who are facing these issues. I hope to convey the process as we experienced it, as well as the immense emotional toll it took on our family. Continue reading “Special Education Mediation Experience”
Kai turned 16 in August and can’t drive because he’s legally blind. We wanted to mark the occasion by granting him a new level of independence – an independence he’s worked incredibly hard to earn. So when we read about Erik Weihenmayer’s No Barriers Summit in NYC, we thought it sounded like the ideal place for Kai to stretch his wings. Continue reading “Summit Adventure”
Navigating Blindness was featured on Bold Blind Beauty! The blog owner, Stephanae McCoy, is a blind woman who loves style. She is a businesswoman, blogger, and abilities crusader who breaks the myth “blind people can’t be fashionable.” I find Stephanae to be a powerhouse in the blind and visually impaired community and I’m grateful to have our story featured: Continue reading “People Always Ask, “Is Kai Really Blind?””
Last week was Kai’s 16th birthday. I remember when we first heard the words “your son is going blind” and the feelings of dread and loss that swept over me when I realized he would not be able to drive. It’s been 6 years since diagnosis, but right now we are feeling the diagnosis and loss acutely — like a fresh wound. Continue reading “Blindness and the Sixteenth Birthday”