As Featured on Bold Blind Beauty

Navigating Blindness was featured on Bold Blind Beauty! The blog owner, Stephanae McCoy, is a blind woman who loves style. She is a businesswoman, blogger, and abilities crusader who breaks the myth “blind people can’t be fashionable.” I find Stephanae to be a powerhouse in the blind and visually impaired community and I’m grateful to have our story featured: Continue reading “As Featured on Bold Blind Beauty”

The Advocacy Tightrope

In student advocacy, partnering with the IEP team is a key concept. However, some days it feels impossible to straddle the divide between my child’s accessibility needs and the school’s ability to provide timely, accessible materials. When I’m feeling overwhelmed, I ask myself:

  • What exactly is the issue?
  • What does his team believe is the best answer?
  • What does my child believe is necessary?
  • Is “good enough” okay, or will this problem seriously impact his future?

Continue reading “The Advocacy Tightrope”

No Barriers

If you are part of the Visually Impaired community, chances are that you’ve heard of Erik Weihenmayer.  He is widely known for becoming the first blind man to summit Everest and he went on to complete the Seven Summits (summiting the highest peak on each continent). Our whole family has read his latest book about kayaking the Colorado River. He’s co-founder of the No Barriers movement which helps people to overcome barriers and live a life of purpose. The No Barriers motto is, “What’s Within You is Stronger Than What’s in Your Way.”  Click here to watch a great video about Kai & No Barriers. Continue reading “No Barriers”

Blindness and the Sixteenth Birthday

Last week was Kai’s 16th birthday.  I remember when we first heard the words “your son is going blind” and the feelings of dread and loss that swept over me when I realized he would not be able to drive.  It’s been 6 years since diagnosis, but right now we are feeling the diagnosis and loss acutely — like a fresh wound. Continue reading “Blindness and the Sixteenth Birthday”

A New Way to See

The following post was originally written by Kim Owens for FamilyConnect Newsletter:

At the age of 10, my son, Kai, began to lose his vision to an aggressive form of Retinitis Pigmentosa (RP). My dreams for his life were shattered with the doctor’s words, “blindness, no known cure…” I was blind-sided by his diagnosis and could see only darkness. Continue reading “A New Way to See”