Prevent Blindness – Navigating Blindness

Hi everyone, I’m devastated that the Trump administration’s anti- diversity, equity, and inclusion policies target people with sensory loss. The Department of Education recently used the policy to cancel grants that funded our nation’s major braille training programs. No training = Less braille access.

DIVERSITY: Blind, low vision, and DeafBlind students represent diversity in the general student population.
EQUITY: Blind students have the right to receive educational materials in accessible formats such as braille.
INCLUSION: Our students have the right to be included in all aspects of public life and community.
The Department of Education is using these DEI terms to cancel grants that serve our community! We can’t let that happen!

You may remember, that I fought a vicious battle to obtain braille for Kai’s high school math and science classes. We ‘won’ in mediation, and Kai got what he needed, and we made braille access easier for all students in our district, but now the nation’s current and future braille readers are at risk.

BELOW IS THE INFORMATION YOU NEED TO KNOW

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Hi, it’s Kim and I want to tell you about an important piece of legislation called the Early Detection of Vision Impairment (EDVI) Act. Did you know that public school children receive federally funded hearing screenings? The EDVI Act would provide vision screenings, too!

Why is this important? Well…

My 10-Year-Old Son Was Blind and No One Knew!

In first grade, I noticed that my son kept pushing on his eyes and pulling at the lateral corners. Eventually, the area around his eyes became bruised. The doctor said it was allergies and prescribed over-the-counter medicine, but it got worse. Click here to read my full essay about the EDVI Act.

Want to know more? You’re in luck! I recently had the opportunity to chat with Julie Grutzmacher, Director of Patient Advocacy and Population Health Initiatives at Prevent Blindness. In our discussion, we talked more about EDVI and I shared a list of questions I wished I had asked Kai’s first eye doctor. Check out Episode 2 of the Focus on Eye Health podcast hosted by advocate Christopher Hord. Click here to listen.

Would you like to support the EDVI legislation? Click here to learn how you can help because your voice matters! And if you’d like to start using your experience and voice for change, please check out the the ASPECT Patient Engagement Program. I learned how to confidently and succinctly share my family’s story to a wide-range of audiences. I had years of experience mentoring other families, and the IEP process gave me plenty (read: more than enough!) opportunities to advocate for my son’s accommodations, but ASPECT gave me the tools to push for change on a state and national level. I highly recommend this program to anyone who wants to tap into a powerful community of change-makers and flex their advocacy muscles.

Do you want to become a stronger blindness advocate? If so, click here to learn more and apply. Be sure to tell them Kim Owens sent you!