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The Mystery of Acceptance

Happy New Year, friends.

I keep hearing that 2020 is the year of “#Acceptance” so today I’d like to respond to a question from a friend who asks: “You seem to have fully accepted Kai’s sight loss. How do you think you were able to do that?” Continue reading “The Mystery of Acceptance” →

navigatingblindness Acceptance 2 Comments January 9, 2020January 9, 2020 6 Minutes

Recent Posts

The Mystery of Acceptance January 9, 2020
See, Strechay & Momoa November 26, 2019
Kai was Featured on the Savannah News Tonight! November 21, 2019
On Your Mark, Get Set, Go! How Do You Keep Your Blind/VI Child Active & Safe? November 11, 2019
Kai’s Comforts 2019 Collection to Benefit the Governor Morehead School for the Blind in NC October 30, 2019

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We visited our oldest son @geo_cash_ at school this last weekend. He’s finishing up his senior year at UGA before heading off to Houston to be a geologist for Exxon Mobile. He gave us a tour of the geology department and his research space. Then he gave Kai a tour of UGA’s music school and discussed the rich music history in Athens GA. We finished the day at the bowling alley. The competition was fierce! I (mom) was the cheering section (like always) 🙌🏻 It was a great weekend. 🥰 #Brothers #Geology #Music #ProudMom #Family #NavigatingBlindness #RetinitisPigmentosa #Accessibility #Transportation #alttext

Do yourself a favor and listen to this heartfelt podcast by @martelcatalano at @beyondmybattle. Martel talks with 3 people about the ways they responded to their medical diagnoses: Retinitis Pigmentosa, Multiple Sclerosis and Lyme Disease. I listened as I drove myself an hour to get my monthly infusion of Orencia to treat the autoimmune diseases that have rocked my world since 2009. And, as the mom of a teenage son who is losing his sight to Retinitis Pigmentosa this podcast spoke to my heart on many levels. I can attest that both of our diagnoses have profoundly transformed us - a choice we make each day. As I often say, “Willingness is the key.” Picture Description: A graphic announcing Episode 1 of the Beyond My Battle Podcast. The graphic includes a picture of a young adult man standing on beach. #Listen #BeyondMyBattle #NavigatingBlindness #Morphea #UCTD #psoriaticarthritis #Disability #AquiredDisability #ChronicIllness #AutoImmuneDisease #RetinitisPigmentosa #RetinalDisease #AutoImmuneWarrior

I’m officially HALF WAY DONE with the National Federation of the Blind & Library of Congress Literary Braille Transcriber’s Course! I started last Jan and today I submitted lesson 10 of 20. I plan to submit the final manuscript by Thanksgiving with the hope that I will receive certification by the end of the year. After years of fighting for Kai’s access to quality, timely, braille educational materials it will feel so good to be a small part of the solution. ❤️ #Braille #NFB #accessibility #LifeLongLearner #BlindStudents Picture description: Selfie of Kim holding up lesson 10. She is smiling and looks relieved.

A friend recently asked, “How were you able to fully accept Kai’s sight loss?” Click link in bio to read my response. Picture Description: Ocean sunrise image announces a new blog post titled: “The Mystery of Acceptance” on www.NavigatingBlindness.com, link in bio.

I love this photo of Kai and his amazing TVI, Sarah. It was taken outside our fav Thai restaurant where they enjoyed lunch while discussing accessibility issues. Next, they went to the bank and practiced using the ATM, and then Kai picked up a few items from the grocery store with his O&M instructor, AJ. It was a full and fun afternoon of life skills training. Kai & Sarah are both wearing our @EyeSwearApparel shirts! Kai’s shirt says: I can’t count your fingers. (But, I’ve got one for you). And, Sarah is wearing: Blindness is a spectrum. (But, ignorance is opaque.) Kai creates the slogans and profits go toward his college fund. Link in bio @eyeswearapparel. #LifeSkills #BlindSkills #entrepreneur #sarcasm #GraphicTees #Braille #Blindness #tvi #SightLoss #accessibility #AltText

We love braille! Braille has allowed Kai to thrive in STEM classes. This is Kai’s honors chemistry Braille book. One chemistry text book = 13 boxes of braille. This textbook was created by Georgia instructional materials center (GIMC). It was ordered by his teacher of the visually impaired (TVI) and sent to his parapro. The parapro organizes the content according to his teacher’s lesson plans and provides it to Kai as needed (due to size of each section). Once Kai finishes the class, the parapro boxes everything back up in a very specific and organized manner and sends it back to the state to be used by another student. The production of one textbook can cost as much as $25k so it’s very important to respect and protect these tactile resources. The invention of refreshable braille displays allows Kai to access many documents via portable technology, but there is currently no tech replacement for accessing info found on the graphics, maps, charts and graphs contained in these Braille documents. We fought hard for access to these valuable materials. Every child has the right to an accessible education. Parents, if you are having trouble gaining access to classroom materials please reach out for help. **January is National Braille Literacy Month, and since Kai is a Braille user and I’m in the process of becoming a nationally certified Braille transcriber, we are excited to share braille with you! ** #Braille #LouisBraille #UEB #Tactile #Learning #BlindStudents #Blind #Accessibility #AltText

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