Last week was the first week my legally blind son was back in school since the holidays. It was also the week that the action items in our formal mediation agreement were to be implemented by his high school.
The amount of internal stress I felt about his return to school took me by surprise. My fight-or-flight instinct kicked-in keeping my muscles tense, my breathing shallow, my mind jumpy and making sleep elusive. Continue reading “Breathe, Mama Bear, Breathe”
Kai turned 16 in August and can’t drive because he’s legally blind. We wanted to mark the occasion by granting him a new level of independence – an independence he’s worked incredibly hard to earn. So when we read about Erik Weihenmayer’s No Barriers Summit in NYC, we thought it sounded like the ideal place for Kai to stretch his wings. Continue reading “Summit Adventure”
It’s Fall and I’ll be super honest, I want to hibernate. I’ve been in a self-imposed cave trying to gather my emotional resources to go through the mediation process against our local school system. (Click here to read more about the decision to file the complaint with the GADOE.) Conflict resolution is hard and some days it I feel overwhelmed and allow myself to have a full-blown pity party. Other days I duck and cover and simply stay in and off of social media. Other days I remember to take care of myself and eat well, meditate, paint and swim. Today, I stuck my head out of my cave long enough to re-connect with people in the sight loss community. And, I was so encouraged to listen to a podcast by my new friend Derek Daniels at Life After Sight Loss. Continue reading “As Featured on Life After Sight Loss”
In student advocacy, partnering with the IEP team is a key concept. However, some days it feels impossible to straddle the divide between my child’s accessibility needs and the school’s ability to provide timely, accessible materials. When I’m feeling overwhelmed, I ask myself:
- What exactly is the issue?
- What does his team believe is the best answer?
- What does my child believe is necessary?
- Is “good enough” okay, or will this problem seriously impact his future?
Continue reading “The Advocacy Tightrope”
Last week was Kai’s 16th birthday. I remember when we first heard the words “your son is going blind” and the feelings of dread and loss that swept over me when I realized he would not be able to drive. It’s been 6 years since diagnosis, but right now we are feeling the diagnosis and loss acutely — like a fresh wound. Continue reading “Blindness and the Sixteenth Birthday”