In student advocacy, partnering with the IEP team is a key concept. However, some days it feels impossible to straddle the divide between my child’s accessibility needs and the school’s ability to provide timely, accessible materials. When I’m feeling overwhelmed, I ask myself:
- What exactly is the issue?
- What does his team believe is the best answer?
- What does my child believe is necessary?
- Is “good enough” okay, or will this problem seriously impact his future?
Continue reading “The Advocacy Tightrope”
Last week was Kai’s 16th birthday. I remember when we first heard the words “your son is going blind” and the feelings of dread and loss that swept over me when I realized he would not be able to drive. It’s been 6 years since diagnosis, but right now we are feeling the diagnosis and loss acutely — like a fresh wound. Continue reading “Blindness and the Sixteenth Birthday”
As our son’s vision diminished our world was expanding to include Retinal Specialists, Orientation & Mobility (O&M) instructors and Teachers of the Visually Impaired (TVI).
We were totally new to this world of visual impairments and had no idea how our son would be able to continue to thrive in school. Continue reading “The First Steps”