The Advocacy Tightrope

In student advocacy, partnering with the IEP team is a key concept. However, some days it feels impossible to straddle the divide between my child’s accessibility needs and the school’s ability to provide timely, accessible materials. When I’m feeling overwhelmed, I ask myself:

  • What exactly is the issue?
  • What does his team believe is the best answer?
  • What does my child believe is necessary?
  • Is “good enough” okay, or will this problem seriously impact his future?

Continue reading “The Advocacy Tightrope”

Blindness and the Sixteenth Birthday

Last week was Kai’s 16th birthday.  I remember when we first heard the words “your son is going blind” and the feelings of dread and loss that swept over me when I realized he would not be able to drive.  It’s been 6 years since diagnosis, but right now we are feeling the diagnosis and loss acutely — like a fresh wound. Continue reading “Blindness and the Sixteenth Birthday”