Basically we learned it’s a very rare genetic cause to his central sight loss + autoimmunity causing peripheral loss. We will write more later, but please watch his video below. #Complex #Rare
Update on Kai’s Visit to Duke
Published by navigatingblindness
Hi, I'm Kim Owens and my 18-year-old son is going blind from a genetic retinal disease ABCA4 Retinopathy plus Autoimmune Retinopathy. I'm hoping to connect with other parents of blind and visually impaired children to share experiences about navigating blindness. View all posts by navigatingblindness
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