Update on Kai’s Visit to Duke

Acceptance 1 Minute

Basically we learned it’s a very rare genetic cause to his central sight loss + autoimmunity causing peripheral loss. We will write more later, but please watch his video below. #Complex #Rare

Published by navigatingblindness

Hi, I'm Kim Owens and my 18-year-old son is going blind from a genetic retinal disease ABCA4 Retinopathy plus Autoimmune Retinopathy. I'm hoping to connect with other parents of blind and visually impaired children to share experiences about navigating blindness.

Published

Leave a Reply

Fill in your details below or click an icon to log in:

Gravatar
WordPress.com Logo

You are commenting using your WordPress.com account. ( Log Out /  Change )

Google photo

You are commenting using your Google account. ( Log Out /  Change )

Twitter picture

You are commenting using your Twitter account. ( Log Out /  Change )

Facebook photo

You are commenting using your Facebook account. ( Log Out /  Change )

Cancel

Connecting to %s