Update on Kai’s Visit to Duke

Acceptance 1 Minute

Basically we learned it’s a very rare genetic cause to his central sight loss + autoimmunity causing peripheral loss. We will write more later, but please watch his video below. #Complex #Rare

Published by navigatingblindness

Hi, I'm Kim Owens and my 17-year-old son is going blind from a disease called Retinitis Pigmentosa. I'm hoping to connect with other parents of blind and visually impaired children to share experiences about navigating blindness.

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